Emma Matthews’ son Louis began having seizures in 2016 aged 12. He’s now 23, been seizure-free for six years and is living “a full, happy life”.
She fears coming off Bedrolite could kill her son. She said: “It’s a cliff-edge condition, if it’s stopped, you could die that night.”
Matthews from the City of London, said Louis has already tried to come off the oil in the past and his seizures immediately returned.
She said her son was “terrified of dying in the night”, adding: “He knows that’s a real possibility if you have severe seizures and you don’t have the drugs.”
Bedrocan told the BBC: “While Bedrocan Netherlands and Bedrocan International were declared bankrupt, there is still Bedrolite inventory available in the Netherlands” and…